Anyway, on August 20th, 2013, we had our always anticipated ultrasound. We just loved every chance we had to hear our precious baby's heartbeat and see her cute features. The ultrasound tech showed an image of her right foot, paused, and mentioned a couple of her toes looked larger than the others. As usual, I worried, but Kevin assured me that everything would be fine and it was probably "just the angle." We went about the final four weeks of pregnancy and tried not to think about it. Little did we know the adventure we were about to begin.
This blog follows our journey in search of the best treatment for our daughter's macrodactyly.
Pregnancy & Ultrasound
My pregnancy was a difficult one - filled with kidney stones, gestational diabetes, and pre-term labor. While in the hospital for the kidney stones, I was given pain medication called dilaudid. Dilaudid is a Category C drug, meaning the risk for pregnant women can not be ruled out. The only reason I'm mentioning any of this is to see if any other woman was given this during pregnancy and had a child with macrodactyly. Just wondering if there is any connection.
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ReplyDeleteWe’ve communicated a few times through emails. My macrodactyly surgery was in the 1950s. My 1st 3 toes were affected and were webbed. 2nd and 3rd amputated. I walk normally with some balance issues. That foot is a size larger than the other due to the enlarged forefoot and the length of the big toe and the enlarged joint affects the width. But strangely that leg is bigger - looks swollen in comparison. I buy shoe size in between- 1/2 too big for 1 and 1/2 too small for affected 1. Growing up children made fun of me. Even in high school I encountered immature remarks. In adulthood if children stare, I smile and engage with them and explain on their level. In early adulthood I wore open toed shoes. Abandoned it because of adults who stared and rude questions “what did you do to your foot”. But I’ve always been thankful to be able to walk and wear normal closed toed shoes. Shriners did the surgery which I was less than 2 years old. For some reason parents were not allowed to stay and could visit only 2 days weekly! Mom shared tearful stories about this. My siblings have always been protective and to this day get concerned when walking long distances or if on my feet for long periods. Well on in years, my forefoot has increased in size and padding under the toe is much thicker and painful sometimes. I endure - surgery is not appealing. Well this is my life experience with it. I’ve never explained it before. I’ve never encountered a doctor who up until me had actually seen macridactyly in person and only a couple knew it could include toes.
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